Wednesday, March 9, 2011

Peter Pan

When babies are in womb they receive oxygenated blood through the umbilical cord; they aren't really using their lungs so their circulatory system operates slightly differently. All babies are born with some level of pulmonary hypertension and there is a duct in the heart that acts like a blow off valve. This duct was open in the womb and allowed blood to skip the lungs by flowing backward through the heart out to the body. This duct closes as the hypertension naturally resolves and babies make the transition from fetal circulation to grown-up circulation.

Sullivan's hypertension was so bad that this duct needed to remain open or he would have gone into heart failure. Essentially the doctors were saving him by allowing him to use his fetal system until the pressure in his lungs reduced.

Two days ago (and based on an echocardiograph) Sully's doctors decided he was ready to grow up and took him off a drug that was helping to keep this duct open.

He had another echo yesterday and so far so good, the duct is still open a bit but his heart is working as it should and no signs of heart strain.

This is all very good! And I am reading him Peter Pan. We cuddle every afternoon for at least two hours until my extremities go numb and my bladder starts failing me.


  1. I can only imagine how hard it was to wait for all the cuddles. You and Neil look so content snuggling your little man. So glad that you guys are getting your fill.

    The news on the PPHN is encouraging and we are continuing to send happy thoughts. Keep it up Sully!

    Kiss his toes for me!

  2. Oh what good news....
    you two look so content reading Peter Pan...or snoozing...Sully just might be having a happy little snooze on his mom.

    What an amazing miraculous little guy,
    you are Sullivan Josef Ross.

    Warm cozy nana vibes to you all....

  3. He's such an amazing baby! And I remember your bladder, T...hahaha....remember driving to bike races and stopping almost every hour to pee! Ha. I LOVE Peter Pan..second star to the right and straight on til morning. I bet Sully loves napping and listening to your voice and heartbeat. Woopee for his strong little heart doing it's thing. We love you guys! Looks like he is getting some more hair...or just the light?? but it's so cute and fuzzy.

  4. Oma and I are both glad to hear the good news. I wish I could be there with you.

    xo care