Tuesday, May 3, 2011

Belated update

Sorry I haven't updated my blog for a while Sully hasn't been feeling well for the last week and it has been extra stressful and exhausting. He is having some airway screening tests today and a CT scan of his lungs. He likely has a urinary tract infection which has been making him feel unwell but the major issue is that he is having trouble maintaining his oxygen saturations when awake and is having "life threatening episodes" several times a day. To help these episodes the doctors have adjusted his ventilator settings to CPAP; Sully is essentially breathing against continuous pressure and controls the rate and volume all by himself (this is actually a step forward). Also his feeding tube may not be in the right place so he is currently getting an x ray...he has mostly been sedated the last few days in order to keep him stable.

Sent from my iPhone


  1. Thinking of you guys every day - all the best! Be strong.

  2. thank you so much for your continued updates...i check in every day to see how things are going...i'll keep you all in our thoughts.

  3. We are thinking of you all and sending lots of love and light
    Keep fighting hard Sully

  4. Thinking of you guys every day.